Department of Human Genetics


Although OFCs are among the most common structural birth defects and occur across all regions and demographic groups, research to date has mostly been limited to participants receiving treatment or residing near academic institutions and medical centers engaged in research of OFCs. Our study has been designed to accommodate remote participation from around the country using online questionnaires and mail-in saliva collection kits. We seek to expand the availability and accessibility of research to geographically diverse populations.

We are looking for study volunteers with a medical history of cleft lip and/or cleft palate, their parents, and any other affected family members, for a research study about genes that may contribute to clefting. Participation includes online surveys about family and medical history and DNA testing. Local participants will have photos taken. Volunteers will be compensated for their participation.

Contact Us

Project Contact Information


Elizabeth J. Leslie, PhD
Principal Investigator

Grace Carlock
Research Coordinator